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SMAS, RAREis, and the National Scleroderma Foundation |
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At the age of five, Julia was diagnosed with a rare, autoimmune disease; juvenile systemic sclerosis (JSSc). After numerous hospital visits, Julia, who is now 12, is embracing life with unwavering enthusiasm.
Inspired by her spirit, in collaboration with RAREis and the National Scleroderma Foundation, we worked to orchestrate an unforgettable experience for Julia and her family, crafted by country music artist, Ashley Barron, who was also diagnosed with the same disease.
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